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everyday. News From Ben’s Friends Changing patients’ lives everyday. Search for: Primary Menu Ben’s Friends Ben’s Friends Social Media Kit Informational Top 3 Latest Helpful Information about Primary Sclerosing Cholangitis Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile Sascha Gallardo November 7, 2023 November 7, 2023 Informational Top 3 Latest Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It Sascha Gallardo September 28, 2023 September 28, 2023 Informational Top 3 Latest Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination Sascha Gallardo September 28, 2023 September 28, 2023 Read More Helpful Information about Primary Sclerosing Cholangitis Sascha Gallardo November 7, 2023 November 7, 2023 Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile Read More Read More Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients Sascha Gallardo September 28, 2023 September 28, 2023 Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It Read More Read More Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families Sascha Gallardo September 28, 2023 September 28, 2023 Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination Read More Read More Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact Sascha Gallardo August 30, 2023 August 30, 2023 Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance, Read More Read More Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain Sascha Gallardo August 21, 2023 September 28, 2023 For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring Read More Read More The Family’s Burden: Shedding Light on the Challenges of hATTR Amyloidosis Sascha Gallardo July 19, 2023 September 28, 2023 Hereditary Transthyretin (hATTR) Amyloidosis is an inherited condition caused by mutations in the transthyretin gene, leading to the accumulation of Read More Read More Butterfly Skin Unmasked: The Challenge of Living with Epidermolysis Bullosa Sascha Gallardo June 26, 2023 August 21, 2023 Recognized as both butterfly skin” and the worst disease you’ve never heard of,” epidermolysis bullosa (EB) casts a profound impact Read More Read More The Emotional Impact of Living with Psoriatic Arthritis Sascha Gallardo May 26, 2023 May 26, 2023 Living with a chronic illness like psoriatic arthritis entails the constant presence of emotions such as frustration and loneliness. These Read More Read More A Guide to Navigating Interactions with Lupus Patients Sascha Gallardo May 19, 2023 May 19, 2023 Lupus is a chronic condition that can affect various parts of the body, including joints, skin, kidneys, heart, and more. Read More Read More Sarcoidosis Awareness: Shedding Light on a Rare but Significant Disease Sascha Gallardo April 26, 2023 April 26, 2023 Did you know that there are diseases that can affect almost any part of the body? One of such diseases Read More Read More What You Need to Know About Sjögren’s Syndrome Sascha Gallardo April 24, 2023 April 24, 2023 Isn’t it frustrating when you are unwell, experiencing more than the common cold, and the doctors cannot figure out what Read More Read More What Changes Can You Make to Your Diet? Sascha Gallardo March 28, 2023 March 29, 2023 One big study conducted by the Harvard T.H. Chan School of Public Health analyzed the effect of a healthy lifestyle Read More Read More Have you heard of Multiple Myeloma? Sascha Gallardo March 28, 2023 March 28, 2023 Being diagnosed with cancer can have a tremendous impact on the patient’s life. From dealing with the diagnosis emotionally, to Read More Read More Time to pay attention to congenital heart defects Sascha Gallardo February 20, 2023 February 20, 2023 When talking about heart diseases, we usually think of poor lifestyle choices as causes like smoking, lack of exercise, and Read More Read More 7 Things to Look for When Choosing a Doctor Sascha Gallardo November 1, 2022 November 1, 2022 When you are experiencing symptoms and know that something is wrong, do you settle with the first doctor you meet? Read More Read More 4 Things to know to help a friend living with Addison’s Disease Sascha Gallardo July 21, 2022 July 21, 2022 Addison’s Disease is a rare autoimmune condition which attacks the adrenal glands and causes insufficient production of aldosterone and the Read More Read More Connect with Ben’s Friends!! Sascha Gallardo July 1, 2022 July 5, 2022 Good news! You can now receive a copy of Ben’s Friends’ quarterly e-newsletter. By subscribing to our newsletter, you will: Read More Read More Some of the Autoimmune Rare Diseases in Ben’s Friends List of Communities Sascha Gallardo July 1, 2022 July 1, 2022 The immune system is supposed to protect us by attacking bacteria and viruses. For people who have autoimmune diseases, however, Read More Read More Help spread awareness about rare diseases Sascha Gallardo February 24, 2022 February 25, 2022 Imagine suddenly having difficulty swallowing every time you eat. You feel that there’s something stuck in your throat and you Read More Read More Some tips on how to improve your mental and emotional health Sascha Gallardo June 7, 2021 June 7, 2021 Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain Read More Read More How to prepare for a surgery Sascha Gallardo May 11, 2021 October 11, 2021 After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to Read More Read More An Unspoken Conversation between a TN patient and her daughter Sascha Gallardo April 28, 2021 April 28, 2021 Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it Read More Read More Preparing for Your Doctor’s Appointment Sascha Gallardo October 13, 2020 September 14, 2023 Getting the most out of your doctor’s visit for a rare disease can be quite challenging. Needless to say, it Read More Read More The Ripple Effect: How ADEM Impacts Patients and their Loved Ones Sascha Gallardo July 14, 2023 August 30, 2023 Acute Disseminated Encephalomyelitis (ADEM) is a rare disorder marked by severe swelling in the brain and spinal cord. It usually Read More Read More What could it be like living with Myasthenia Gravis? Sascha Gallardo June 14, 2023 June 14, 2023 Imagine getting up in the morning… …You hit the shower. But while washing your hair, you have to put down Read More Older Posts News From Ben’s Friends Changing patients’ lives everyday. Copyright © All rights reserved. Theme: Minimal Blocks Pro...